"Knowledge itself is power." Sir Francis Bacon, Meditationes Sacrae (1597)

Anal Cancer Prevention Guidelines and Key Studies

  1. International Anal Neoplasia Society (IANS) Guidelines for the Practice of Digital Anal Rectal Examination

  2. International Anal Neoplasia Society (IANS) Guidelines for Anal Cancer Screening

  3. International Anal Neoplasia Society (IANS) Practice Standards in the Detection of Anal Cancer Precursors

  4. Treatment of Anal High-Grade Squamous Intraepithelial Lesions to Prevent Anal Cancer ANCHOR Study

  5. National Institutes of Health (NIH) Office of AIDS Research (OAR) Guidelines for the Prevention and Treatment of Opportunistic Infections in Adults and Adolescents with HIV

General Resources

International Anal Neoplasia Society (IANS): IANS is the professional society devoted to the prevention and treatment of AIN (anal intraepithelial neoplasia) and anal cancer. 

International Papillomavirus Society (IPVS): IPVS is the global authority on papillomaviruses. Our mission is to contribute to the elimination of papillomavirus-related diseases. 

European Society of Coloproctology (ESCP): ESCP will be the professional organization in Europe for the prevention, treatment, education and research into colorectal disease. 

HPV Cancers Alliance – One Less Worry: HPV Cancers Alliance has partnered with the International Papillomavirus Society (IPVS) to support the One Less Worry campaign and the collective efforts to eradicate HPV and HPV associated cancers. 

National HPV Vaccination Roundtable and American Cancer Society: Moving towards ending vaccine-preventable HPV cancers.

HPV World: The Newsletter on Human Papillomavirus

American Society for Colposcopy and Cervical Pathology (ASCCP): Improving lives through the prevention and treatment of ano-genital & HPV-related diseases. 

Anal Cancer Foundation: The Anal Cancer Foundation is dedicated to empowering anal cancer patients and accelerating prevention and treatment methods that eliminate this disease.

Farrah Fawcett Foundation: HPV-related cancer research, patient assistance and prevention programs to help spread the word so the cancer struggle will cease.

Anal Neoplasia Clinic, Research and Education Center (ANCRE): ANCRE is committed to clinical research to advance patient care and provides access to cutting-edge techniques in the field of anal cancer prevention. 

Fenway Health: Fenway Health has been a leader in anal dysplasia care with the creation of their HRA clinic in 2003, with the intent of serving and supporting the needs of our patients.

Centers for Disease Control (CDC) – HPV Facts

Centers for Disease Control (CDC) – HPV-Associated Cancer Statistics

Mayo Clinic – Anal Cancer Symptoms and Causes

American Cancer Society – Anal Cancer Information

Galleri® – Multi-Cancer Early Detection Test: Grail offers a point-in-time multi-cancer early detection test, Galleri. Among the 50 tested cancers, HPV-related head and neck, anal, vulvar and cervical are included. It's not yet FDA-approved or covered by insurance and it costs $950. 

Local Resources:

Immunize Arkansas

UAMS Northwest Regional Campus

Vector Health & Wellness

Diversity Family Health

NWA Equality 

Infectious Disease Specialists of Northwest Arkansas

Arkansas Department of Health

Northwest Arkansas Pathology Associates

HerHealth 

ARcare 

Cancer Challenge

Highlands Oncology 

Hope Cancer Resources

Reading / Listening List:

Thriver Stories: Anal Cancer Patient Stories by Anal Cancer Foundation

Cancer Up the Wazoo: Stories, Information and Hope for Those Affected by Anal Cancer by Angela G. Gentile

Lifting the Fog: How (Anal) Cancer Improved my Health and Lifestyle, book and podcast by Leila Schwarz

Going Viral: No One Should Die of Embarrassment podcast by International Anal Neoplasia Society

Strange Bedfellows by Ina Park, MD, MS

The Immortal Life of Henrietta Lacks by Rebecca Skloot

The First Cell and the Human Costs of Pursuing Cancer to the Last by Azra Raza, MD

Share your experiences and resources.